Jack and his friends would like to thank everyone who took part in our 8th Annual Golf Outing at Klein Creek. We really enjoyed spending the evening with all of our KCNQ2 friends and our new friend, Kevin Butler. Thanks to your generous support, we were able to raise a lot of money and awareness for all of the kids around the world that are suffering from this condition.

We would also like to congratulate our $5,000 helicopter ball drop winner Dave Otto who generously gave back all of his winnings to the foundation. Thanks Dave! And thanks again to Elite Air for sponsoring such a fun event!

The Jack Pribaz Foundation would like to recognize and thank all of our sponsors and donors who continuously make this event a huge success every year. Mark your calendars for next year’s outing on Friday, June 26, 2020…. Hope to see you all there!

"We are proud to announce KCNQ2 Encephalopathy Awareness Week as passed by the Resolution of the Illinois Senate. KCNQ2 parent and advocate Rick Terven worked tirelessly with the General Assembly to pass this measure on behalf of all of the families that have loved ones who suffer from this condition".

Click Here to view the official document.