When The Jack Pribaz Foundation began, we set out to raise awareness and find a cure for Jack and all the kids we knew would someday be found with a mutation of the KCNQ2 gene. The Foundation has never been about just Jack, but at the start we didn't know of any other affected kids besides him...yet.
By Spring 2014 Jack was in good company. We have come to know of more than 700 children worldwide who have a mutation of the KCNQ2 gene. As our KCNQ2 community has grown, so too has the need for a broader platform from which to communicate our mission. And so the Foundation launched a second website: www.kcnq2.org.
Please visit us at www.kcnq2.org!